Ari Wibowo - Indonesian teenager who suffers from a rare genetic disorder erythroderma.
Poor boy has to reset their skin every 41 days, which is why he was called "boy-snake" .This terrible disease causes permanent peeling and flaking of the skin, which decreases with large chunks of it. Thus, his skin is completely renewed every 41 den.
16-valent Ari also forced every hour to wet themselves with water, and every three hours to use moisturizing lotion for the skin to die from excessively dry kozhi.
Photographer Nurkoli Ahari Lubis captures the life of this unfortunate boy who struggle daily with his illness, suffering from severe pain all over my body and trying to survive. He also has had problems with his vision - he sees the bad in the right glaz.Vneshne teenager looks as if was a victim of the strongest ozhogov.
"If he stops to moisturize your skin, it hardens, and Ari can not move or even speak," - said the photographer Nurkoli Ahari Lubis edition of The Daily Mail.Nesmotrya on daily meal Ari tries to live a normal life in his village. For a long time he suffered from superstitions of the local religious community that he was considered almost a demon.
In the village even as it spread the rumor that he had poluchelovek-poluyascheritsa and chat with him dangerous to zhizni.
"He plays, learns along with the other children. Very fond of snacks instant noodles and crackers - says photographer. - But it was not always. He had long endure ridicule and contempt on the part of local residents. As a result, got used to him and took this as he is ».