12-year-old girl with a rare disease

In 12-year-old girl named Ontlametse Falaste there are only a couple of years of life. "I call myself a first lady because I'm the first black child with this disease .... You know even some dark-skinned child with such a disease? "- Says the girl. Ontlametse - the only black child diagnosed with Hutchinson-Gilford syndrome - a rare and fatal disease, accelerating the aging process. In the entire history of mankind only two dark-skinned child with the disease - both of them are dead, one in the US, the other in the Netherlands. Experts believe that at the same time in the world from 200 to 250 children suffer from this disease. Children with this disease die from heart failure at the age of 8 to 21 years, suffering from high blood pressure, stroke, angina and heart failure.