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When the children began to lose their sight, the family went to see the world.
The children of Edith Lemay and Sebastian Pelletier have a serious genetic disease. And they can not affect the course of the disease, as a result of which at some point their babies will completely blind. Loving parents decided to do everything possible to prolong childishness Give your children as much joy as possible.
Instagram / @pleinleursyeu In this article editorial office "Site" I want to share with you the heartwarming story of a family from Canada.
Edith LeMay and Sebastian Pelletier noticed something wrong when they realized that their eldest daughter could not see well in dim lighting. She literally stumbled across things as if they weren't in space. At that time, the baby was only 3 years old.
Concerned parents turned to a specialist. A lot of tests and tests, namely genetic, have yielded results. It turned out that the girl suffers from retinitis pigmentosa. This is a rare genetic disease that can cause a person to go completely blind.
Instagram / @pleinleursyeu The second child, a boy named Leo, was lucky. Doctors did not find him with such a disease. But Colina and Laurent (the youngest children of the couple) are waiting for the same fate as Mia, their older sister. It is hard to imagine what parents feel when they cannot influence the fate of their children.
Would it seem that modern technology is not enough to cure such a disease? Unfortunately, current gene therapies are not suitable for healing the gene that affects the children of Edith and Sebastian. All three will go blind when they reach middle age.
The probability that a cure will ever be found is still there. But there are absolutely no guarantees. Therefore, Edith and Sebastian decided to do everything possible to ensure that their children had time to enjoy the beauty of our planet until they finally lost sight.
Incorruptible childhood happiness, illuminating the bright faces of children, has become the main goal of parents. They decided to travel around the world and show their offspring what it can be. The idea came about when Mia started learning Braille. Doctors advised to do this as soon as possible, given that the girl still sees well.
But it is much more important to fill the memory of children with visual associations. To show them what they will not be able to see in the future, but they will be able to remember. The family did not have a specific route. The main goal is to fulfill the dream of each of them.
Instagram/@pleinleursyeu For example, Mia wanted to ride horses and Leo wanted to see Pokémon. Knee wanted to ride the train and Laurent wanted to ride the camel. Heroes began their journey from Namibia, and then crossed the whole of Africa. They also visited Turkey, Mongolia and Indonesia.
Each child has a moment that they will remember for life. But their common main memory was a balloon flight in Cappadocia. Edith recalls Leo saying then, "Mom, it's like a dream."
Being with children 24/7 is never easy, especially if you have four. However, Edith and Sebastian learned many life lessons from the trip. First, the journey brought parents and children together. Secondly, the relationship between brothers and sisters improved.
Instagram / @pleinleursyeu All family members felt united, felt like they were one big team. Parents hope that this bond will continue as they grow up. Mia, Leo, Colin and Laurent taught mom and dad to notice details, to see beauty in seemingly ordinary things. Edith and Sebastian saw the world through the eyes of their children. And it's expensive!
And on this trip, the children saw how people live. Sometimes they do not have running water, electricity and other amenities. And their homes leave much to be desired. Edith and Sebastian believe this is a valuable lesson that will make their heirs appreciate what they have.
Instagram / @pleinleursyeu Edith and Sebastian took a lot of pictures while traveling. They shared their memories on Instagram to inspire others to explore the world. Also, the spouses show that even with such a serious ailment you can cope. The main thing is to accept the situation as it is and learn to live with it.
We were very moved by this story. We hope it touches the strings and your soul!
Instagram / @pleinleursyeu In this article editorial office "Site" I want to share with you the heartwarming story of a family from Canada.
Edith LeMay and Sebastian Pelletier noticed something wrong when they realized that their eldest daughter could not see well in dim lighting. She literally stumbled across things as if they weren't in space. At that time, the baby was only 3 years old.
Concerned parents turned to a specialist. A lot of tests and tests, namely genetic, have yielded results. It turned out that the girl suffers from retinitis pigmentosa. This is a rare genetic disease that can cause a person to go completely blind.
Instagram / @pleinleursyeu The second child, a boy named Leo, was lucky. Doctors did not find him with such a disease. But Colina and Laurent (the youngest children of the couple) are waiting for the same fate as Mia, their older sister. It is hard to imagine what parents feel when they cannot influence the fate of their children.
Would it seem that modern technology is not enough to cure such a disease? Unfortunately, current gene therapies are not suitable for healing the gene that affects the children of Edith and Sebastian. All three will go blind when they reach middle age.
The probability that a cure will ever be found is still there. But there are absolutely no guarantees. Therefore, Edith and Sebastian decided to do everything possible to ensure that their children had time to enjoy the beauty of our planet until they finally lost sight.
Incorruptible childhood happiness, illuminating the bright faces of children, has become the main goal of parents. They decided to travel around the world and show their offspring what it can be. The idea came about when Mia started learning Braille. Doctors advised to do this as soon as possible, given that the girl still sees well.
But it is much more important to fill the memory of children with visual associations. To show them what they will not be able to see in the future, but they will be able to remember. The family did not have a specific route. The main goal is to fulfill the dream of each of them.
Instagram/@pleinleursyeu For example, Mia wanted to ride horses and Leo wanted to see Pokémon. Knee wanted to ride the train and Laurent wanted to ride the camel. Heroes began their journey from Namibia, and then crossed the whole of Africa. They also visited Turkey, Mongolia and Indonesia.
Each child has a moment that they will remember for life. But their common main memory was a balloon flight in Cappadocia. Edith recalls Leo saying then, "Mom, it's like a dream."
Being with children 24/7 is never easy, especially if you have four. However, Edith and Sebastian learned many life lessons from the trip. First, the journey brought parents and children together. Secondly, the relationship between brothers and sisters improved.
Instagram / @pleinleursyeu All family members felt united, felt like they were one big team. Parents hope that this bond will continue as they grow up. Mia, Leo, Colin and Laurent taught mom and dad to notice details, to see beauty in seemingly ordinary things. Edith and Sebastian saw the world through the eyes of their children. And it's expensive!
And on this trip, the children saw how people live. Sometimes they do not have running water, electricity and other amenities. And their homes leave much to be desired. Edith and Sebastian believe this is a valuable lesson that will make their heirs appreciate what they have.
Instagram / @pleinleursyeu Edith and Sebastian took a lot of pictures while traveling. They shared their memories on Instagram to inspire others to explore the world. Also, the spouses show that even with such a serious ailment you can cope. The main thing is to accept the situation as it is and learn to live with it.
We were very moved by this story. We hope it touches the strings and your soul!
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